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Melbourne Australia Beauty Pavilion Makes Its Glamorous Debut at Cosmoprof North America – Las Vegas 2024

Global Victoria

For the first time ever, Melbourne Australia Beauty will command the spotlight at Cosmoprof Las Vegas, the premier international B2B beauty exhibition in North America. From July 23-25, the vibrant and innovative spirit of Melbourne, Australia’s beauty industry will be on full display at the Mandalay Bay Convention Center in Las Vegas. The pavilion is organized by Global Victoria, Australia and is hosted and managed by Access Beauty Insiders a leading marketing consulting firm. Global Victoria, Australia is the State Government of Victoria's trade facilitation agency commissioned to empower Victorian businesses to transform global aspirations into reality. “The state of Victoria is a powerhouse in the beauty industry, home to more than a third of Australia’s top beauty brands and contract manufacturers,” says Elizabeth Moffat, Trade Manager Consumer Goods at Global Victoria. “We’re thrilled to bring these innovative, cutting-edge brands to a global stage at Cosmoprof North America.” Global Victoria is proudly presenting the Melbourne Australia Beauty Pavilion, featuring innovative beauty brands from the State of Victoria. Notably, more than one third of all Australian beauty and makeup product exports originate from this region. “As consumers increasingly prioritize organic, clean, natural beauty products, as well as environmental impact, Victorian companies are well-positioned to meet these market demands” says Mildred Ruiz, US Trade Manager for Consumer Goods at Global Victoria Creating a real buzz, the Pavilion will feature a diverse range of brands, from revolutionary professional salon haircare and vegan beauty cases to self-tanning, skincare infused with indigenous Australian botanicals and must have accessories. Melbourne Australia Beauty pavilion will be located in the Skincare, Makeup & Fragrance Hall space #7087 and will showcase the following companies: Australian Glow Specializing in natural, organic self-tanning products, Australian Glow infuses its formulas with a Quad Collagen Complex to nourish the skin while providing a long-lasting, sun-kissed glow. “ Our products are vegan, cruelty-free, and eco-friendly, embodying our commitment to inclusivity and sustainability,” the brand shares. [Click on Get the Glow to find out more] Booby Tape Pioneers of the world’s first breast lift tape, Booby Tape has gained a cult following and is a staple among A-list celebrities. “We’re the number one choice with over 20,000 stockists in 60+ countries,” boasts the brand. Beyond tape, their lineup includes viral personal care cosmetics that have taken social media by storm. [Click on Lift with Booby Tape to discover the brand] Botany Essentials With over two decades in the industry, Botany Essentials offers a range of skin, hair, and personal care products that leverage Australia’s unique indigenous botanicals. “Our new Botany Native Flora range is a testament to the power of Australian plant ingredients,” says the brand. Their DNA Serums blend clinically proven actives for ultimate skin nourishment. [Click on Unveil Botany Essentials to know more] BYS Cosmetics Renowned for its vibrant, hypoallergenic makeup, BYS Cosmetics is a social media darling with a knack for colorful, trend-setting collaborations. “We prove that high-quality, vegan, and cruelty-free cosmetics don’t have to come with a hefty price tag,” says the brand. Their offerings promise to delight and inspire every makeup enthusiast. [Explore BYS Cosmetics ] ETOILE Collective Crafted for beauty enthusiasts and professionals alike, ETOILE Collective’s stylish cosmetic bags and organizers have garnered over 10 million views on TikTok and been featured in Vogue and the TODAY Show. “We celebrate the culture of getting ready, making every routine a moment of joy and style,” they state. [Find out more about Organize with ETOILE ] Muk Haircare Muk Haircare delivers a comprehensive range for salon professionals, including haircare, styling products, and a full suite of electrical tools. Their future-focused education platform is revolutionizing hairdressing, ensuring that salons remain at the cutting edge. “We’re a one-stop-shop for distributors looking for top-tier hair products and education,” the company notes. [Discover Muk Haircare ] Connect with these brands at Cosmoprof North America 2024 The Melbourne Australia Beauty Pavilion will be an unmissable feature at Cosmoprof North America, embodying the innovation and diversity of Victoria’s beauty sector. To connect with these brands and explore the forefront of beauty trends, visit the pavilion and meet the visionaries driving this vibrant industry forward. This press release serves as your invitation to experience the dynamic world of Melbourne Australia Beauty at Cosmoprof North America 2024. Be there to witness the fusion of innovation, culture, and cutting-edge beauty from down under! For more information about Melbourne Australia Beauty, contact Mildred Ruiz Leal at mildred.ruizleal@global.vic.gov.au. --- About Global Victoria, Australia: Global Victoria empowers Australian beauty businesses to transform global aspirations into reality. As the trade facilitation agency of the State Government of Victoria, they open doors to international markets, providing the expertise and resources necessary for Australian brands to thrive worldwide. [Learn more about by clicking here Global Victoria ] About Access Beauty Insiders: Founded by Daniela Ciocan, an award-winning beauty and exhibition marketing executive and leading voice in the cosmetics industry, Access Beauty Insiders offers strategic marketing services that amplify brand presence and foster market expansion. [Discover Access Beauty Insiders ] Contact Details Mildred Ruiz Leal mildred.ruizleal@global.vic.gov.au

July 10, 2024 07:53 AM Eastern Daylight Time

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B-Side Lounge: The Newest Music Venue Opens at Graton Resort & Casino

Graton Resort & Casino

Graton Resort & Casino is celebrating summer with the opening of its latest music venue, B-Side Lounge, on Thursday, July 11. Located within Bistro 101, this exciting new space will feature live entertainment, weekend DJs, Sunday brunch parties, and more. The opening line-up of live performances has something for everyone from country music to dance parties. Thursday, July 11 – NorCal native Tyler Rich kicks it off with crowd pleasing country Friday, July 12 – Official DJ of the Golden State Warriors DJ D-Sharp delivers non-stop beats Saturday, July 13 – Bay Area favorite DJ Shabazz spins the hottest tracks to keep the party jumping Sunday, July 14 – Recent American Idol sensation Kaeyra performs at a special brunch “B-Side Lounge is the new, go-to destination for entertainment,” said Lana Rivera, President of Graton Resort & Casino. "We've handpicked an incredible lineup of local and touring artists who bring their heart and soul to the stage, making every night at B-Side Lounge a special event." B-Side Lounge offers an electrifying atmosphere with a wide range of music, both old and new. The space features a glamorous full bar, premium lounge seating and a lively dance floor. The menu offers a selection of local craft beers on tap and specialty cocktails, as well as nonalcoholic drinks. Explore a variety of upcoming entertainment events at www.gratonresortcasino.com. *** About Graton Resort & Casino Graton Resort & Casino, located in Rohnert Park, California, is a premier destination for entertainment, dining and gaming in Northern California. Boasting a luxurious atmosphere and world-class amenities, Graton Resort & Casino offers guests an unparalleled experience with its diverse selection of restaurants, bars, gaming options and live entertainment venues. From thrilling gaming action to upscale dining and relaxing spa treatments, Graton Resort & Casino provides an all-encompassing retreat for visitors seeking excitement and relaxation. Resort access is limited to guests aged 21 or older. For more information, visit www.gratonresortcasino.com. ### Contact Details Landis Communications Inc. Brianne Miller +1 650-575-7727 graton@landispr.com Company Website https://www.gratonresortcasino.com/

July 09, 2024 08:01 AM Pacific Daylight Time

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Ryvid offers Power Controller Upgrade to boost performance of its Anthem and Outset Electric Motorcycles

Ryvid, Inc

Ryvid – the California-based Electric Motorcycle manufacturer – is offering customers the opportunity to transform their riding experience by ordering the Power Controller Upgrade by Accelerated Systems Inc for their Anthem or Outset Electric Motorcycles. New customers are able to configure their order for a new Ryvid Anthem or Outset to have the ASI Controller fitted at Ryvid’s Californian assembly facility. Alternatively, existing owners are able to install the ASI Controller to their Anthem as a DIY project or by requesting a visit from a Ryvid technician. Testing by Ryvid engineers found that the ASI Controller provided faster acceleration thanks to a significant increase in power and torque delivery. Peak torque at the wheel using the stock 4.7:1 final drive saw output rise from 250 ft-lb for the stock controller to 334 ft-lb using the Power Controller Upgrade by ASI. Similarly, peak horsepower jumped from 20hp to 27hp. And the best part: no negative effect to the battery range. In fact, the Power Controller Upgrade by ASI not only makes the Ryvid Anthem and Outset models more entertaining to ride, but also more highway capable thanks to the improved acceleration and torque. It's worth noting that, given the performance increase, the Power Controller Upgrade by ASI is recommended for experienced riders. However, both the Ryvid Anthem and Outset models retain their selectable riding modes, allowing riders to choose either Sport or Eco modes. When set to Eco, the power delivery is softened somewhat and regenerative braking is provided. In Sport mode, the rider can experience the full performance of the 72V air-cooled, brushless DC motor and removable 4.3kWh battery with integrated charger. In Sport mode, regenerative braking is stronger and can be further increased by a rider selected trigger. To create the “ultimate urban slayer,” the Power Controller Upgrade by ASI can be fitted to any new Ryvid Anthem or Outset ordered directly from the company website. As a limited time promotional offer, Outset orders placed before July 31, 2024 will receive the ASI Controller for free. New or current owners of the Ryvid Anthem can order the $800 controller via the website’s Shop tab at ryvid.com/collections/bike-accessories. For full disclosure: DIY installation is not for beginners. Owners will need to install the supplied secondary wiring harness to power the Power Controller Upgrade by ASI. It isn’t a simple plug 'n play installation but there is a video to guide owners at ryvid.com. Installation is estimated at approximately three hours. Alternatively, contact the Ryvid support team to request installation by a Ryvid technician for a service fee. Riders and media who have been able to experience and review the Ryvid Anthem with ASI Controller have all reported very positively on the available performance, elevating their positive impressions of the highly affordable electric motorcycle, which is available at $6,495 for the Anthem or $5,995 for the new Outset. AMERICAN BUILT The Ryvid Anthem Electric and Ryvid Outset Electric are available to order now from ryvid.com. The $6,495 Anthem is available for immediate delivery in a choice of five colors, while deliveries of the $5,995 Outset will begin in the Summer. It can be specified in either Sector Red or Vapor Grey. Please note, riders must have a motorcycle license to ride the Anthem or Outset. The Anthem and Outset share a rigid steel backbone frame, instrument display, removable 4.3kWh battery with integrated charger, 72V air-cooled, brushless DC motor, controller, and sealed belt drive. Both machines are capable of 75mph+ top speed and will provide up to 75 miles range*. The battery can be charged quickly from both 110V and 220V power supplies. Outset has an 33” seat height but its compliant suspension and narrow cushion mean it will comfortably accommodate a range of riders. The Anthem seat is adjustable from 31-34” to accommodate an even wider range of riders. Weighing just 313 and 315 lb, respectively, the Anthem and Outset share featherweight architecture and a low center of gravity. With the major components positioned at axle level, both bikes exhibit extraordinary handling characteristics, making them extremely easy to change direction at high speed or maneuver at low speed. Another benefit of electric power is the Ryvid Reverse Drive. At the push of a button when stopped, the rider is able to move the motorcycle backwards at walking speed to extricate it from perhaps a tight parking position or awkward slope. *Quoted range was established using the recognized Urban Dynamometer Driving Schedule. Battery range may vary and can depend on conditions such as rider weight, cargo weight, speed, temperature, wind, tire pressure, terrain, incline, etc. ABOUT RYVID Ryvid is a cutting-edge manufacturing corporation in the high-growth field of Electric Light Vehicles. Founded by enthusiasts, engineered by innovators, and designed by aerospace industry gearheads, the Ryvid mission is to create more sustainable and enjoyable personal mobility. The company name was derived by merging Rhythm and Avid; elements of motion and emotion that define the experience of using our products. Ryvid produces revolutionary, lightweight, affordable electric motorcycles with a significantly lower carbon footprint than its competitors. With the same innovation applied to all models, Ryvid is poised to revolutionize urban commuting. Ryvid products are designed and assembled in California. For further information, please visit ryvid.com The Ryvid Anthem is available for delivery now at $6,495. The new Ryvid Outset is available at $5,995, with deliveries beginning Summer 2024. Contact Details Greg Emmerson greg@theidagency.com Company Website https://ryvid.com/

July 09, 2024 06:05 AM Pacific Daylight Time

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Wise Food Storage Emphasizes the Importance of Preparedness This Independence Day

Wise Food Storage

This Independence Day, as we celebrate our nation's freedom, it's important to remember the value of being prepared for unforeseen circumstances. In today's unpredictable world, self-sufficiency is key. Wise Food Storage, America’s favorite survival food provider, is here to help you take charge with their special 4th of July sale. From now until July 5th, customers can enjoy up to 60% off select deals and 25% off everything else with code FREEDOM24 at checkout. This sale offers an opportunity to stock up on essential supplies, ensuring your family's well-being in any situation. "Now's the perfect time to ensure your family's well-being with essential supplies," says Norm Ramos, Wise Food Storage spokesperson. "In today's unpredictable world, relying solely on outside help isn't enough. Take charge this 4th of July and be ready for anything." It's crucial to control what you can, like being prepared with food that can last up to 25 years. Explore our wide range of products, including organic food buckets, calorie boosting mega bundles, and more. Wise Food Storage's mission extends beyond providing food; it's about empowering individuals to take control of their readiness and resilience. By offering versatile and long-lasting food options, they provide people with the tools to thrive in any circumstance, from natural disasters to economic uncertainties. For more information on the Wise Food Storage 4th of July sale and to browse our selection of preparedness products, visit https://wisefoodstorage.com/. About Wise Food Storage Wise Food Storage is a premier provider of survival food and supplies, dedicated to helping families and individuals prepare for the unexpected. Our products are designed for long-term storage with up to 25 year shelf life, ensuring that you and your loved ones have access to nutritious meals in any emergency. Contact Details Amalie Jorgensen Ajorgensen@readywise.com Norm Ramos Nramos@readywise.com

July 03, 2024 01:00 PM Eastern Daylight Time

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A Call for Preparedness Amid Modern Challenges

ReadyWise

As we commemorate Independence Day, it's crucial to reflect on the significance of this holiday and the freedoms we cherish. In a pivotal election year, America faces tough challenges, including international threats to our democracy. According to a report from Freedom House, global freedom is threatened by political violence and the erosion of democratic institutions. ReadyWise, the leading manufacturer of emergency foods, is here to remind everyone that self-sufficiency and preparedness are vital in these uncertain times. Our 4th of July sale offers a rare Buy 1, Get 1 Free deal on select emergency items, which can be mixed and matched, plus 25% off sitewide on everything else with code FREEDOM24 at checkout. "Now is the time to be prepared with essential life-saving products," said Brandon Eriksson, Spokesperson for ReadyWise. "In a world becoming increasingly uncertain, relying solely on government support is not enough. Take your freedom into your own hands this 4th of July and ensure you are ready to face challenges head-on." ReadyWise offers a wide selection of both short-term and long-term solutions to meet the needs of every family. Choose what suits your family best from our wide range of products, including single ingredient #10 cans, organic, and gluten-free options. Our emergency food supplies provide peace of mind and act as "insurance you can eat.” For more information on the ReadyWise 4th of July sale and to browse our range of emergency preparedness products, visit https://readywise.com/. About ReadyWise: ReadyWise is a leading provider of emergency food supplies, committed to helping families and individuals prepare for the unexpected. Our products are designed for long-term storage lasting up to 25 years, ensuring that you and your loved ones have access to nutritious meals in any emergency. Contact Details ReadyWise Amalie Jorgensen ajorgensen@readywise.com Company Website https://readywise.com

July 03, 2024 08:58 AM Eastern Daylight Time

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Seaweed Bath Co. Announces Acquisition of Andalou Naturals and Mineral Fusion

Seaweed Bath Co.

Seaweed Bath Co., the original ocean-inspired natural beauty brand, today announced its acquisition of Andalou Naturals and Mineral Fusion, two leading brands in the natural beauty space. All three brands are available nationwide at retailers such as Whole Foods Market, Amazon, Sprouts Farmers Market and Natural Grocers, among others. “We have admired Andalou Naturals and Mineral Fusion for a long time, and we are thrilled to bring together the resources, knowledge and extensive experience of the teams,” says Allison Grossman, Co-Founder of Seaweed Bath Co. The acquisition of Mineral Fusion, a top-selling natural cosmetic brand, and Andalou Naturals, a brand known for its innovative natural skincare products, combined with Seaweed Bath Co.’s range of body, hair and sun care products, creates a unique opportunity to streamline product development and increase operational efficiencies. “Our team is very excited to welcome Andalou Naturals and Mineral Fusion to the Seaweed Bath Co. family,” says Tim Schaeffer, Chief Executive Officer, Seaweed Bath Co. “These acquisitions are our first step in creating a best-in-class natural beauty platform that leverages scale to drive product and sustainability innovation as well as serve the evolving needs of both retail partners and consumers.” Natureza Growth Partners, a leading consumer growth equity firm, led Seaweed Bath Co.’s financing for the acquisition. In connection with the transaction, Natureza's Managing Partner Collin Eckles will be joining the Seaweed Bath Co. Board of Directors, and Managing Partner Fernando Gentil Jr. will serve as Chairman of the Board. Advisors KPMG Corporate Finance LLC, a leading global investment banking firm, served as a financial advisor on the sale. Legal support for the transaction was provided by Polsinelli. About Seaweed Bath Co. Founded in 2010, Seaweed Bath Co was inspired by its founders’ discovery of the amazing benefits of seaweed while on a personal journey to find a better solution for their family’s troubled skin. Since then, Seaweed Bath Co. has continued to harness the endless gifts of the ocean in inspiring, nourishing and restoring formulas for all skin and hair types. Seaweed Bath Co.’s product range includes body care, hair care, sun care and facial care. The brand proudly supports ocean conservation through partnerships with marine mammal rescue and rehabilitation organizations. Seaweed Bath Co. is available nationwide at Whole Foods and Amazon. Unlock the magic of the sea at seaweedbathco.com. About Andalou Naturals As pioneers in the natural beauty industry, Andalou Naturals leverages the power of Nature’s Intelligence®, through revolutionary Fruit Stem Cell Science®. It enhances the skin’s natural radiance, harnessing the power of plants to fortify and nourish the body’s essential building blocks while supercharging natural defense systems to create a luminous, energized appearance from head to toe. Andalou Naturals’ commitment to beauty through pure ingredients, innovative formulas, eco- friendly practices, and cruelty-free standards guides the brand’s formulation while its dedication to the empowerment of women lays a beautiful foundation for generations to come. https://andalou.com/ About Mineral Fusion Mineral Fusion began as a mineral brand in 2007 focused on developing products that are a fusion of beauty and skin care that focus on correcting flaws, not just covering them up. Since its launch, Mineral Fusion has grown to become the #1 cosmetic brand at natural retailers. The brand is centered around providing clean cosmetics products that don’t compromise on the quality, reliability, exceptional wear, and confidence-boosting performance that consumers know and love. The Mineral Fusion portfolio of products is safe and gentle for all skin types, hypoallergenic and free of gluten, parabens, phthalates, synthetic fragrances, talc and are primarily vegan. In addition to having the most EWG VERIFIED™ products of any beauty brand, Mineral Fusion is also Leaping Bunny Certified cruelty free. Mineral Fusion is available nationwide at Whole Foods Market, select Target stores and Target.com and fine natural health and beauty stores. https://www.mineralfusion.com/ FOR SEAWEED BATH CO. PRESS INQUIRIES, PLEASE CONTACT KIM FARRINGTON AT KIM@FARRINGTONPR.COM. FOR ANDALOU NATURALS AND MINERAL FUSION PRESS INQUIRIES, PLEASE CONTACT DANA TUCHMAN – KAYNES AT DTUCHMAN@TRACTENBERG.COM. Contact Details Seaweed Bath Co. Kim Farrington KIM@FARRINGTONPR.COM Andalou Naturals and Mineral Fusion Dana Tuchman - Kaynes DTUCHMAN@TRACTENBERG.COM Company Website https://seaweedbathco.com/

July 02, 2024 09:00 AM Eastern Daylight Time

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Hot Tech for a Hot Summer of Fun:

YourUpdateTV

Summer is here and many are looking for innovative ways to enhance their lifestyles, whether it’s optimizing finances, mastering the art of grilling, or upgrading their homes with the latest technology. Tech and lifestyle expert, Stephanie Humphrey, did a satellite media tour to share some hot tech ideas for a hot summer of fun. A video accompanying this announcement is available at: https://youtu.be/TAPtzm_lIcQ Smart Financial Tools for Kids Starting Summer Jobs Many kids are starting summer jobs and it’s important to provide them with age-appropriate financial tools to help them learn how to responsibly manage their money. Chase's High School and College Checking accounts are great for this–these accounts provide helpful tools to manage their finances more independently, and all through the Chase Mobile® app. With features like Zelle® for sending money, tracking what they’ve spent, and help with budgeting, kids won’t need to download multiple apps, making it easier for both them and their parents. It's all about empowering them to gain financial independence in a digital-first world. For more information, visit chase.com/studentbanking Smart Home Cleaning with Roborock Qrevo Pro One of the must-have gadgets for your smart home this summer is the Roborock Robot Cleaning Vacuum Qrevo Pro. With its FlexiArm Design Edge Mopping System it ensures thorough cleaning even in hard-to-reach areas and along edges. The Qrevo Pro offers an effective full-suite self-maintenance with hot water mop washing and intelligent dirt detection for automatic re-wash and re-mop. The Qrevo Pro carries advanced robotic cleaning technology, making it more accessible to customers. It’s available at Target, Amazon & Roborock's official website. Revolutionizing Summer Grilling with Weber’s Searwood Pellet Grill Summer and grilling go hand in hand, and the latest from Weber is truly exciting. This is the Searwood, Weber’s next-generation pellet grill. It's designed to give people more confidence and control when they grill, so you can make delicious meals any time of day. Whether you enjoy the authentic smoky flavor of low and slow BBQ or the searing heat for a perfect steak, this grill can do it all and be ready to cook in less than 15 minutes. The brain of the grill - the Rapid React PID works so that the grill self-adjusts as you cook. Plus, with the Weber Connect app, you can monitor and control the grill remotely, making it perfect for gatherings where you want to spend time with your guests and not be tied to the grill. ecoATM: Recycle and Earn Cash Your Pre-owned Smartphones Did you know there is $43 billion worth of unused tech sitting in our homes across the US? That is where ecoATM comes in. ecoATM helps people properly recycle their unused smartphones for cash on the spot—you can get up to $270 for an iPhone 13 Pro and great trade-in deals for other devices from Samsung, Google and more. Since 2009, ecoATM has collected over 45 million devices – giving a second life to more than 20 million pounds of e-waste, preventing it from ending up in landfills. They have over 6,000 kiosks in national retailers such as Walmart and Kroger. In less than 10 minutes, you can recycle and earn cash on your used device. Go to ecoATM.com to find a kiosk near you and get an estimate for your device. For more tech tips, you can follow Stephanie on social media at @TechLifeSteph. About Stephanie Humphrey Technology and Lifestyle Expert Stephanie Humphrey is a former engineer who merges her passion for lifestyle media with in-depth tech expertise to show everyday people how empowering, enriching and fun technology can be. Stephanie is currently a technology contributor for ABC News where she works as part of the nationally-syndicated Strahan Sara & Keke team. Contact Details YourUpdateTV +1 212-736-2727 yourupdatetv@gmail.com

July 01, 2024 01:35 PM Eastern Daylight Time

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Snapchat Releases New Teen Safety Measures

YourUpdateTV

A video accompanying this announcement is available at: https://youtu.be/7Hv0EHNRJ_g The digital world can be a challenge to navigate, and helping keep teens safe online is not just a priority—it’s a necessity. Snapchat is working to make its app even safer—now expanding a range of features to help keep Snapchat a place where people can be comfortable expressing themselves with the friends they know in real life. These extra protections for young people are more than a tech upgrade—they’re part of Snapchat’s ongoing commitment to building tools to help users connect with friends in a safe, secure way. Rachel Hochhauser, Snap’s Head of Safety Operations Outreach, conducted a nationwide media tour on June 25th to discuss these new features. Topics and features she discussed included: · Expanded In-app Warnings Teens will now see a warning message if they receive a chat from someone who’s been blocked or reported by others or is from a region where the teen’s network isn't typically located – signs that the person may be a stranger. · Simplified Location-Sharing Expansion of reminders to make sure Snapchatters are always up to date on which friends they’re sharing their location with on the Snap Map. · Enhanced Friending Protections These protections prevent certain suspicious friend requests from getting to teens in the first place, further reducing teens’ ability to connect with people they may not know in real life. · Blocking Improvements Improvements aim to prevent bullying and repeated harassment by limiting outreach from any new accounts created by someone who’s been blocked. For more information, visit https://parents.snapchat.com/ Contact Details YourUpdateTV +1 212-736-2727 yourupdatetv@gmail.com

July 01, 2024 01:02 PM Eastern Daylight Time

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Shedding Light on Cystic Fibrosis

YourUpdateTV

Cystic fibrosis (CF) is a rare, progressive, and genetic disease that currently affects about 40,000 people in the United States. CF is the result of a defective gene, inherited from each parent, and the disease can impact people of all races and ethnicities. Recently, KC White, Board Chair of the Cystic Fibrosis Foundation, participated in a nationwide satellite media tour to discuss the disease, her personal journey, and how the Foundation is helping progress care and treatment options. A video accompanying this announcement is available at: https://youtu.be/8wj8u0JEqLU CF is a life-shortening disease that prevents our bodies from clearing mucus. This can lead to lung infections, poor nutrition, lung disease, and a host of unique challenges that can impact every aspect of a person’s life. When it was first discovered, it was considered a fatal pediatric disease. But due to transformative advancements in treatments and high-quality care, the life-expectancy for someone born with CF today is 56. While that number is climbing there is still a long way to go and unfortunately, not all people with CF equally benefit from this progress. KC White was elected chair of the Cystic Fibrosis Foundation’s Board of Trustees in 2022 after serving on the Board since 2005. Diagnosed with cystic fibrosis at age 3, White has been a committed volunteer and inspiring advocate for the Foundation since childhood and is the first person with CF to serve as board chair. When she was diagnosed, she wasn’t expected to live past high school age, but her family refused to accept that fate, which prompted their dedication to the Foundation’s work. Because of recent treatments known as modulators, about 90% of the CF population (including KC) experienced an incredible transformation in their health. With this though, comes navigating unplanned challenges including careers, finances, family, and more. In addition to fueling the research, particularly in genetic therapies, that will lead to transformative treatments for the entire CF population, the CF Foundation works to support the CF community in all aspects of their lives through support programs and fostering connection opportunities. The CF Foundation is committed to finding a cure and providing all people with CF the opportunity to lead long, fulfilling lives. The Foundation is aggressively funding research and drug development, advancing high-quality, specialized care, and partnering with and advocating for the CF community. For more information, visit CFF.ORG About KC White KC White was elected chair of the Cystic Fibrosis Foundation’s Board of Trustees in 2022 after serving on the Board since 2005. Diagnosed with cystic fibrosis at age 3, White has been a committed volunteer and inspiring advocate for the Foundation since childhood, speaking at her first Foundation event when she was only 9 years old. She is the first person with CF to serve as board chair. White received her Master of Applied Positive Psychology from the University of Pennsylvania in 2022 and currently serves as an assistant instructor in the program. She is also the Head Varsity Women’s Lacrosse coach for the Chagrin Falls, Ohio, Tigers. She and her husband, Justin, have one son, Mac. About the Cystic Fibrosis Foundation The Cystic Fibrosis Foundation is a donor-supported nonprofit organization leading the relentless pursuit of a cure for cystic fibrosis. The Foundation is committed to providing all people with CF the opportunity to lead long, fulfilling lives by funding research and drug development, advancing high-quality, specialized care, and partnering with and advocating for the CF community. The Foundation funds more CF research than any other organization, and nearly every CF drug available today was made possible because of Foundation support. The organization supports and accredits a national network of over 130 CF care centers recognized by the National Institutes of Health as a model of care for a chronic disease. Also, the Foundation manages support programs and fosters connection opportunities for the CF community. Based in Bethesda, Md., the Foundation’s impact is made possible by the work of nearly 70 local chapters across the country. Contact Details YourUpdateTV +1 212-736-2727 yourupdatetv@gmail.com

June 28, 2024 12:45 PM Eastern Daylight Time

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